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Canadian Organization for Rare Disorders
Education and support, providing information on thousands of rare disorders and advocating for funding and research.
http://www.raredisorders.ca/
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Contact a Family
Information about this organization as well as the CaF directory of specific conditions and rare disorders. Also details about the Rare Disorders Alliance - UK.
http://www.cafamily.org.uk/
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Rare Disorders
Welcome to Rare-Disorders.com, your one stop information center for rare diseases. Although the internet has made information about many of the more common.
http://www.rare-disorders.com/
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